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Johnny's and Lizzie's story

By Stroke Aotearoa

Kerikeri couple Johnny and Lizzie headed out for a bite to eat one afternoon, not possibly knowing how the day would unfold for them.

Johnny and Lizzie

The Kerikeri couple were sitting outside the eatery waiting for their food to arrive when Johnny started to feel unwell.

"I was sitting there with my hand on my head, just having a slight headache. And my speech was slightly slurred. I was trying to think through the whole situation, as to how well I was talking."
"I told my partner after a little bit 'I am just going to go down to the ground; don't worry about it. Don't be alarmed.' I felt like I was going to faint. So, I went down, then tried to get myself up but I knew my balance was out."

He was helped to the car, and the pair immediately headed to hospital. Johnny started to doze off, but Lizzie told him "Don't fall asleep!".

She was aware of the F.A.S.T. acronym to help recognise the signs of stroke - Face drooping, Arm weakness, Speech difficulty, Take action & call 111. All thanks to having seen the F.A.S.T. fridge magnets and her work caring for elderly stroke survivors. Johnny replied "Why? Is it one of those?" "Yes" she confirmed. "It's one of those."

What followed was a misdiagnosis that meant the couple was losing precious time. At the hospital, they were told Johnny was too young for it to be a stroke; it must be vertigo.

The couple were sent home. Lizzie wasn't sure Johnny was 'fine', as the doctor had assured them. But then she told herself, "I'm not a doctor - let it go."

However, by the next day Johnny's situation hadn't improved. So, with the help of the wider family, the couple made the 90-minute car trip to Whangārei hospital. When they arrived, Johnny felt 'massive relief.'

"There was a lady who had come out with a wheelchair, and as she saw me, she freaked out and was like 'Sorry I can't push you!' And I was like 'No, no - it's alright.' And that's the last thing I remember."

Johnny was eventually diagnosed with a cerebellar infarct (or cerebellar stroke) - a type of stroke that impacts the back of the brain. Outcomes include reduced oxygen delivery, which results in loss of motor and balance control.

He was admitted to Whangārei hospital on 21 January 2023 and transferred to Auckland hospital for neurosurgery. He was transferred back to Whangārei and was discharged two weeks later.

Johnny is now in Lizzie's full-time care. The outcome could have been even worse had Lizzie not recognised the signs of stroke from the outset. She says the importance of swift action can't be underestimated.

Show video transcript

0:01

My name's Johnny Reece Samuels Te Kauwhata.

0:05

I'm from Kaikohe, we're in Kerikeri.

0:08

I live with my partner, been living with her for the last year and a half. Loving every minute of it.

0:16

I'm Lizzie, Johnny's partner.

0:19

Basically, grew up in Kerikeri.

0:21

I was early childhood teaching for 10 years and then the week I met him, took a year, and just did a lot of post stroke support work with the elderly in the homes, funnily enough.

0:36

And now I'm here and I'm full time caring for Johnny at home.

0:40

Before it happened, we went out and we went to go grab some food, ordered our food, went outside, sat at the table.

0:51

And I was told, I was just sitting there with my hand on my head, just having a slight headache.

0:59

And then my speech was slightly slurred.

1:03

I was tryna think through the whole situation as to how well I'm talking.

1:08

I told my partner after a little bit that I'm just going to go down to the ground.

1:14

Don't worry about it. Don't be alarmed. I'm just going to go down to the ground.

1:21

Cause I felt like I was going to faint.

1:24

So, I went down, I tried to get myself up.

1:28

They held me down; I knew that my balance was out.

1:34

After a bit, they had picked me up and helped me back to the car.

1:39

So, we started taking off, heading out of Kerikeri. And I started falling asleep.

1:48

And then my partner was like, "don't fall asleep"

1:50

I was like why's that? Is it one of those?

1:54

She was like, "yes, it's one of those". I said, oh, no.

1:56

Then I started freaking out.

1:58

On the ride over, we were able to identify that it was a stroke. From using the F.A.S.T magnets, the things I learnt through my work and things.

2:10

So, took him into the hospital, wheelchaired him in. And I said to the doctor there, I think he's had a stroke.

2:19

And I just got you know, he's too young.

2:22

It's not possible.

2:23

We're not gonna do the tests. It's gonna be a waste of time.

2:26

It's probably just a vertigo.

2:29

And Johnny was saying that he's had enough, he wanted to go home.

2:32

The doctor had said, this is enough, that he's fine. Just go home.

2:35

So, I thought I need to humble myself. I'm not a doctor. Let it go. Which I did, and got him home.

2:44

Next day, he was just the same, if not worse.

2:48

The next day I got a phone call from my dad asking me if anything had gotten better or worse.

2:56

And I said, it's very much stagnant. Everything's still very much the same.

3:00

He said, come to Kawakawa. We'll pick you up from there. Okay?

3:05

So I jumped in the back of my partner's parents car, drove off to Kawakawa roundabout, jumped in the back of my parents RV.

3:13

We drove off to Whangarei Hospital.

3:16

And as I seen the Whangarei Hospital building reflection in the window, I felt a massive relief.

3:27

And there was a lady that had come out with a wheelchair, and she seen me. She freaked out. She was like, I'm sorry, I can't push you.

3:34

And I was like, no, no, it's fine. It's all right. And that was the last thing I remember.

3:38

I think that having that knowledge gave me a wider perspective as to just F.A.S.T.

3:49

Cause yeah F.A.S.T - face, arm, speech and time to take action.

3:54

That is the most common.

3:56

But the biggest thing was time. Time, time, time.

3:59

You gotta get, you gotta get it sorted.

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